Blog: National Partnership for Action
Posted on 12/18/2013 by Kiran Ahuja
Over the last four years at the White House Initiative on Asian Americans and Pacific Islanders (WHIAAPI), we have been working with federal agencies across the board to improve data collection, analysis, and dissemination of findings and reports on Asian Americans and Native Hawaiians and Pacific Islanders (NHPIs). We have been particularly focused on NHPIs, who, according to the 2010 U.S. Census, comprise just 0.4 percent of the total U.S. population, making it difficult to include them in sufficient numbers in most national population-based health surveys. The lack of reliable health data for this population has made it difficult to assess their health status and health care utilization. However, the available data for this population indicates that Native Hawaiians and Pacific Islanders experience significant health disparities when compared to other groups, such as lower utilization of health care services and higher rates of chronic diseases, such as diabetes and obesity.
That's why we welcome the announcement made today that the U.S. Department of Health and Human Services (HHS) will launch the first-ever, large-scale national health survey to collect detailed health information on NHPI households – the Native Hawaiian/Pacific Islander National Health Interview Survey. This information will be collected through HHS' National Health Interview Survey, the nation's largest in-person, household health survey. Never before has there been a study of this scale to assess the health needs of NHPIs, and this type of survey has long been called for by the NHPI community. This important effort will help improve our understanding of the health concerns – from access to health care to health insurance coverage to rates of chronic diseases like diabetes or heart disease – faced by this community and to identify areas of opportunity for federal government to better address these concerns.
WHIAAPI encourages advocates and organizations across the country to join us in spreading the word about this landmark survey. We hope you can continue the conversation with us on Twitter using #NHPI.
Our hope is that the results of this study will provide researchers, policymakers, and community leaders with the data they need to understand and address disparities in health and health care, and provide lessons for data collection and analysis focused on small populations.
The Native Hawaiian/Pacific Islander National Health Interview Survey will begin early next year, and the results will become available summer 2015.
Posted in: Health Minority Populations HHS Health Disparities Federal Asian American Data & Statistics Health Care Health Equity Minority Health Native Hawaiian Pacific Islander Research & Evaluation | Comments | Add a Comment | Comment Policy | Permalink
Posted on 9/19/2013 by Eric Yurkovich
Los Angeles is a city with many health disparities and where residents live often determines their health destiny. A recent study on health conditions in Los Angeles found that low-income communities such as South Los Angeles and Boyle Heights face disproportionate rates of obesity, asthma and violent crime. Geographic location is such an important determinant of health that a person born and raised in Watts can expect to die 12 years sooner than a person born and raised in Brentwood.
The city of Los Angeles’ new planning effort seeks to reduce the consistent gap in health outcomes by elevating “health equity” as a priority for the city. Los Angeles is among the first of cities nationwide to launch the creation of a Health and Wellness Chapter, a high-level policy vision of health that will be embedded in the City’s General Plan, which serves as the city’s planning constitution for long term management and development. Through this effort, the city is prioritizing community health and establishing policies to make Los Angeles a healthier place to live, work and play.
The Health and Wellness Chapter is an important recognition that health happens in communities. A Los Angeles resident who lives in quality housing in a safe community with good schools, open space and access to affordable, healthy food and good jobs has greater opportunities to thrive. Recently, LA’s Health and Wellness Chapter project team released the “Health Atlas”, which provides a data-driven snapshot of health in Los Angeles.
The Health Atlas [PDF | 163 MB] articulates the baseline health conditions in the city and provides a context for understanding how demographic conditions, social and economic factors, the physical environment, access to health care, and health behaviors contribute to the health of Los Angeles residents. The report maps and analyzes over 100 health indicators and identifies where health issues are concentrated, illustrating the opportunity to address health through better community design.
The maps and data will help guide the creation of a new Health and Wellness Chapter for the general plan. It will also be used to target community outreach, with a focus on vulnerable groups and the areas with the greatest health disparities to include their needs in planning for healthier communities.
A draft of the Health and Wellness Chapter will be available for public review in early 2014.
Learn more about the Health and Wellness Chapter .
Posted in: Health NPA Partners Promising Practices Health Disparities Prevention Health Equity Minority Health | Comments | Add a Comment | Comment Policy | Permalink
Posted on 9/18/2013 by Amirah Abdullah
A world free of disparities in health and health care, where all people are able to attain the highest level of health, may appear utopic. However, this is the vision of the Southeastern Health Equity Council (SHEC) for the states of Alabama, Florida, Georgia, Kentucky, Mississippi, North Carolina, South Carolina and Tennessee. These states are comprised of a diverse population, with some groups demonstrating an increased risk of adverse health outcomes, and many residing in rural locations that restrict access to care.
To achieve its vision of health equity, the SHEC is collecting and utilizing data to outline the challenges and opportunities facing the region. Data is a powerful tool that can illuminate issues, inform decisions, and portray the impacts of such decisions.
As an intern working with the SHEC, I have had the opportunity to contribute to their latest efforts to improve the health of the population by increasing awareness on state-level policies and practices related to health care access, healthy food choices, and cultural competency. From June through August 2013, I researched data in 12 domains using 19 indicators to help answer questions about the physical environment, food choices, health behaviors, diversity in the health care workforce, and health care coverage affect an individuals’ lifespan, with the intent to generate a regional health equity report card.
This report card, which will be available this fall, will present detailed data by race, ethnicity, gender, sexual orientation, urban/rural location, and disability, which will be used by the SHEC for the first time to inform local policy makers. It will allow a look at several domains across multiple demographic measures at the same time, to generate a much needed holistic response to resolving health disparity issues. The SHEC will emphasize health disparity indicators and gaps in existing data to illustrate the importance of collecting data from minority groups. The SHEC developed the report card using Healthy People 2020 goals (where available), year comparisons, and national comparisons to grade each indicator.
Although the SHEC region is known to have some of the poorest performing states in the nation, the data never cease to provide compelling evidence of unequal burdens of disease in our communities. The Southeast represents 19 percent of the total population in the country. Yet in 2010, this region accounted for 21 percent of heart disease mortality nationally, with factors such as obesity, diabetes, and hypertension affecting this population at a substantially higher rate than other areas of the country.
A health equity report card could not come at a more opportune time, with the ongoing national discourse about health care access and reducing the costs of health care. In spotlighting the disparities in the Southeastern region of the country, we create a unique opportunity to educate local and national policy makers, and generate discourse that can influence health outcomes in the region for the better.
We can effectively point policy makers toward decisions that improve healthy food choices, enhance health care access and promote well-being. We also create the opportunity to specify populations and issues that merit the attention of state and local policy makers and communities. Over time, we have a real opportunity to look back in time and ask – “did we make the grade?”
The development of the SHEC health equity report card is an exciting first step in making this vision a reality. However, it is important to remember that we must all play our parts in making the states in the Southeast a healthier place to live.
How do you grade progress on health disparities indicators in your state or region? Let us know by commenting below.
Posted in: Minority Populations NPA Partners Promising Practices Health Disparities Federal Prevention Data & Statistics Health Equity Minority Health | Comments | Add a Comment | Comment Policy | Permalink
Posted on 9/11/2013 by Pamela Ascon
You are in a foreign country and your child is feeling sick. You rush her to the hospital and want to quickly speak to a doctor. Instead, you are given a long form asking many questions in a complete different language. You ask for help, but no one seems to comprehend your heavy accent.
This is the reality that my family and I encountered when visiting medical facilities for many years. As a child who had recently arrived to America, I attempted to act as a translator between the doctor and my mother with the few vocabulary words that I had learned so far in school. I remember my mother’s face emanating discomfort with her inability to fully express her feelings and concerns.
I now understand that the helpless look on my mother’s face was a true reflection of the challenges consistently encountered by many minority populations.
Some of the most significant barriers between healthcare providers and patients are language and cultural differences, which can play a crucial role in patient health outcome. If patients have a hard time communicating with their healthcare provider, this can lead to errors in diagnosis or treatment. With the ample range of cultures in the United States, patients’ cultural beliefs are of equal importance. If a patient’s belief interferes with their treatment option, the clinician should respectfully accommodate the patient while ensuring that they have a successful health outcome.
In 2050, it is estimated that the minority population will account for almost half of the U.S population [PDF | 283KB], underscoring the necessity of culturally and linguistically appropriate approaches. To inform these approaches, the U.S Department of Health and Human Services has recently released the Enhanced National Standards for Culturally and Linguistically Appropriate Services in health and health care, also known as the CLAS Standards. This blueprint guides implementation to advance and sustain culturally and linguistically appropriate health services. It also highlights the importance of providing quality and equal health services to minorities.
Currently, CLAS Standards are being utilized to improve operational functions within the workplace by equipping culturally and linguistically competent staff to serve the needs of the populations that they serve. CLAS Standards improve quality of care and patient safety while decreasing the liability risk for health care providers. They will ultimately prepare health and healthcare organizations to meet the needs of minorities while improving health care quality.
Therefore, I encourage health and health care organizations to adopt and implement CLAS Standards. Working as a team, we can narrow the cultural and language gaps within the health care system and eliminate a major barrier to achieving health equity in the nation.
Posted in: Health Minority Populations Promising Practices Health Disparities Federal CLAS Cultural & Linguistic Competency Health Care Minority Health | Comments | Add a Comment | Comment Policy | Permalink
Smartphone and mobile apps: An important solution to increasing participation and engagement of minority and underserved communities
Posted on 8/22/2013 by Regina Greer- Smith, MPH FACHE
These are exciting times. Today, technology allows us to advance knowledge and empower members of underserved communities with information at rapid speed and with minimal cost. Considering the use of smartphone and mobile apps may be an important solution to increasing participation and engagement of minority and underserved communities in patient-centered outcomes research and comparative effectiveness research. Patient-centered outcomes research involves research that brings both the patient and providers together for shared decision-making for better outcomes and determining the costs and benefits of one course of treatment over another.
According to the Pew Internet and American Life Project , minorities (along with young adults) are leading consumers of health information via mobile platforms. African Americans and Latinos are more likely to own a mobile phone than whites and outpace whites in mobile app use. African Americans are using Twitter to share information, especially about neighborhood events. This information should be leveraged by researchers to use mobile apps and smartphone technology in research engagement with minorities and underserved communities.
Taking the concept a step further, creating apps that deliver education and information from trusted members of communities – such as ministers, physicians and researchers – could increase wider participation because of the trust and relationships that are already in place.
As an example, an innovative research project to engage African American women in research is now underway. Women stay connected using a smartphone app to learn about breast cancer, receive messages about the importance of participation in clinical trials and connect with researchers who they select to work with.
Developing mobile apps to include education and resources about the benefits of participating in patient-centered outcomes research and topics of interest to minority populations could increase their participation and involvement. Consider the possibilities for raising awareness and advancing health equity in research through mobile apps:
Developers and researchers must be aware that patients, caregivers and other community stakeholders are key partners in the development of mobile apps, because mobile apps are being developed for their use to enable and increase their participation – and not solely for the use of the researcher as a recruitment vehicle.
In January, 2013, Regina Greer-Smith, along with a team of healthcare professionals, formed The Midwest /Partners Patient Engagement Cluster , (MPPEC) resulting from involvement with The Patient-Centered Outcomes Research Institute (PCORI), a non-profit organization created from the Patient Protection and Affordable Care Act in October 2012. MPPEC’s mission is to engage patients and researchers in patient-centered outcomes research (PCOR) and comparative effectiveness research (CER).
Posted in: Health Minority Populations NPA Partners Promising Practices Health Disparities Prevention African American Health Care Health Equity Hispanic/Latino Minority Health Research & Evaluation | Comments | Add a Comment | Comment Policy | Permalink
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The NPA works to achieve health equity -- the highest level of health for all people. This blog is a venue for professionals from all fields and sectors to share their thoughts on pressing issues, news and events pertaining to health equity. Follow and participate in this candid discussion.
Recent Blog Posts
→ Changing the Prognosis for Sickle Cell Disease through the Affordable Care Act
→ Winning the battle against health disparities through new technology
→ Improving Data Collection on Native Hawaiian and Pacific Islander Health
→ 2013 Report to Congress on Minority Health Activities
→ The Celebration Continues: Three Kings Day and the Health Insurance Marketplace