Skip Navigation

U.S. Department of Health & Human Services
OMH Logo US Department of Health and Human Services Office of Minority Health The Office of Minority Health 1-800-444-6472
OMH Home | En Español
About OMH
Disparities Efforts
Our Services
Offices of Minority Health
Press Releases
Federal Clearinghouses
Search Library Catalog
Office of the Assistant Secretary for Health (OASH) Home

We're in!

We support health equity for all Americans.

National Partnership for Action logo

Office of Minority Health on Twitter

FYI ... Money & MoreFYI ...
Money & More

Join Our Mailing ListKeep Informed!
Join Our Mailing List

Image of a person asking a questionNeed Help?
Contact Us

HIV/AIDS Awareness Days

Email Updates E-mail subscriptions envelope Content Browser

Sickle Cell Disease: Increasing Access and Improving Care

HHS' Sickle Cell Disease Initiative
The Sickle Cell Disease Initiative will focus on better coordination and collaboration in order to improve care through enhanced public health data as it promotes reliable access to quality care and services, development of new therapies, and biomedical and behavioral research. Read Full Initiative [PDF | 1.3MB]

An estimated 72,000 Americans live with Sickle Cell Disease (SCD) in the United States and approximately two million Americans, including one in 12 African Americans, carry the Sickle Cell Trait (SCT). While advances in health care have increased life expectancy for individuals with SCD, much more needs to be done to expand access and improve health care and outcomes.

Better coordination and collaboration across HHS agencies can significantly improve the care of people with SCD through enhanced disease surveillance, reliable access to quality care and services, innovative new drug development, and biomedical and behavior research.

Secretary Sebelius has charged HHS with making SCD a priority area of focus. The following operating and staff divisions have come together to develop the HHS SCD Initiative:

HHS’ SCD Initiative

Below are specific actions that HHS will take to improve the health of people with SCD:

  • Improve the care of adults and children with SCD through development and dissemination of evidence-based guidelines.
  • Identify measures of quality of care for individuals with SCD and incorporate them into quality programs at HHS.
  • Increase the availability of medical homes to improve access to quality routine care, including specialty care.
  • Provide State Medicaid officials, health care providers and patients and advocacy groups with information about federal matching funds for education and services related to the care and treatment of SCD.
  • Create a comprehensive database of individuals with SCD to facilitate surveillance and the conduct of clinical research.
  • Work with the pharmaceutical industry to increase the pipeline of effective treatments for patients with SCD.
  • Support research to improve health care for people with SCD - including pain and disease management - and to understand the clinical implications for individuals with sickle cell trait.
  • Convene a roundtable to engage national sickle cell advocacy and expert organizations.

Additional Information

If you have additional questions, please contact the Office of Minority Health at 1-800-444-6472

You will need Adobe Acrobat® Reader™ to view PDF files located on this site. If you do not already have Adobe Acrobat® Reader™, you can download here for free. Exit Disclaimer

Last Modified: 09/15/2011 03:40:00 PM
OMH Home  |  HHS Home  |  |  Disclaimer  |  Privacy Policy  |  HHS FOIA  |  Accessibility  |  Plain Writing Act  |  Site Map  |  Contact Us  |  Viewers & Players

Office of Minority Health
Toll Free: 1-800-444-6472 / Fax: 301-251-2160

Provide Feedback