Resources on Clinical Trials

If you are living with lupus, decide if a clinical trial is right for you. Start by talking with your health care provider to discuss your current health and treatments.

Potential reasons to consider joining a clinical trial:

  • You can help test new potential lupus treatments in the diverse patients likely to use them.
  • You and your health care provider believe a drug being studied in a clinical trial may provide you with a new potential treatment option that could work better than the standard options to treat your lupus.
  • You want to help researchers find better ways to fight lupus.
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Where can I get more information about clinical trials?
  1. Ask to your health care provider or specialist (such as a rheumatologist).

    Your health care provider is your best resource to learn more about clinical trials, consider your eligibility, compare the risks and benefits of your current treatment with those of a trial medication, and help direct you to a clinical trial that is right for you.

  2. Search for a clinical trial on ClinicalTrials.gov

    ClinicalTrials.gov is a comprehensive website that has information about all registered clinical trials in the United States. Information on the website is updated by the sponsors conducting the trials. This information includes the study description, plan, participant eligibility, location, and contact information.

    Select Recruiting and not yet recruiting studies to find upcoming studies that might be a good fit for you. You can also search by lupus type and location. More specific instructions are available here.

  3. Connect with a lupus advocacy organization

    Many lupus advocacy organizations like the Lupus Research Alliance support researchers studying lupus and developing more effective treatments. They can provide additional resources on the disease and may be able to refer you to lupus clinical trials being conducted by their partner organizations.

What questions should I ask?

Asking questions and making sure you understand the answers is a critical part of taking charge of your health. Don’t hesitate to express any concerns you may have with your health care provider or the research team. Here are some common questions patients ask about clinical trials. Click here for a downloadable worksheet.

  • What is the purpose of the trial?
  • What kinds of tests and medical products are involved?
  • What are the possible side effects?
  • Will I be paid for my participation?
  • How will my personal information be protected?
  • Can I leave the trial at any time?